Resources for New & Expectant Parents
We’re Here For You
Whether you are pregnant or have a new baby, we are eager to offer our support to you and your family by sharing our personal knowledge and experiences or providing you with additional literature and information. We also look forward to meeting you, your family and your new baby!
If you have just received a prenatal diagnosis of Down Syndrome, please know that you are not alone. We know pregnancy post-diagnosis can be a scary, uncertain time, but our experience has shown that these feelings are temporary, and typically replaced after the baby’s birth with joy and celebration. In the meantime, we are here for you.
DSASNJ is ready to provide information, support, and guidance. You can read various freely available resources on your own, or contact us for support. We can meet with you in person, or talk over the phone or via e-mail. Please reach out to one of our Outreach Coordinators.
If you desire, we can make arrangements for you to meet people with Down syndrome of various ages, or their families. We can match you with a parent mentor if you wish, including parents who have had a prenatal diagnosis, or who have experienced a specific medical condition.
We Can’t Wait to Meet You!
Outreach Coordinators are here to offer additional support and guidance. Contact us today to receive a new parent packet and/or set up a home visit.
We also welcome you at any of our events during your pregnancy. We look forward to getting to know you!
Additional Resources
Understanding a Down Syndrome Diagnosis is an accurate, balanced, and up-to-date booklet for use when delivering a diagnosis of Down syndrome and is part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).
DownSyndromePregnancy.org is part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).
The website offers a free downloadable practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome which was co-written by DSASNJ member, Nancy McCrea Iannone. The website also hosts an interactive blog, which gives expectant parents a place to ask questions, voice concerns, and receive feedback.
